Ok, so I met with Marian, Jack's teacher at St. Anne's School for Special Needs. We talked about my concerns and their plan for him, and after leaving I felt much better about him attending there. She completely agreed with my concerns and promised to work with me, keeping me informed of his progress.
When I asked about her training she said she's been through every single available course around autism and the therapies in place. She is very positive and we agree the best scenario for Jack would be mainstream school next year.
In the meantime, I'm going to implement our plan for supplements and diet changes based off of Jean's recommendations. Here begins the long hard road, where we give back to Jack what he needs and worry less about our own needs. Every single penny will have to go into his care and wow - it's not cheap. I applied for the Domiciliary Care Allowance a few weeks ago and that can take up to 14 weeks to get - IF you get it (very difficult to get approved) BUT - they do back date it to the time of diagnosis. We would find out sometime then in November and I suppose I could hold off on therapies and supplements until then but this is his window - from 3 -5 years old and he's turning 4 in November. Any loving mom would start now - so I'll do what I can. The diet is expensive but I'm used to living cheap and cutting corners so I'll put all that into practice to get him what he needs.
Jill, Also--remember a bread machine/food processor can be bought second hand online. (adverts, donedeal, etc)
Jack has a tough time with textures and espeically chewing any type of meat so I'll have to get crafty at getting that into him - protein is a major part of supporting his immune system while the supplements and other parts of the diet programme work to heal his gut issues.
As if it's not hard enough to watch your baby stim on something for an hour, you have to figure out how to squeeze every dime into his recovery care.
At this point I'd sell my soul to save his - if only I believed in the devil.
There are really only two ways to deal with this all - just like with everything else in life.
1.You can stick your head in the sand, continue, hoping and praying for change all the while appreciating what you have and learning to be content with it.
OR
2. You can dive in. Find those people to facilitate the change you want to see for you and the ones you love. Streamline all effort and time into recovery, healing and peace.
I'm not giving up.
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